Gavin and Giveaway Winners

My poor little man is spending an awful lot of time like this these days...

He virtually almost always has a bucket tucked under his chin (he is playing Wii in the picture above and below) because he almost always feels like vomiting. 

  

And unfortunately, this morning, he did. 

A lot.

And it was completely undigested food from yesterday.  

And we ran out of Zofran because his insurance won't let him have as much as he needs.

Because normal children don't live on anti-nausea/vomiting meds that are taken by cancer patients....but, clearly, my son is not normal.  

So this morning I paged his GI not knowing what to do and he called in more Zofran to a 24 hour pharmacy that is open on Sundays and holidays so we could buy it out of pocket.

And at least he has enough now...

When we see his GI on Wednesday, he plans to get Gav's insurance to authorize the amount he needs--they only let him have 9 zofran pills in one month and he has been taking anywhere from 1-3 a day....and has been on it for about 6 weeks.

Some of that time, he used the hospital's IV supply, some of the time he used his own oral prescription, some of the time he used a prescription under Chelsea's name, and then he got one under mine....and it all lasted us til this morning.

It bites that we have to do that just to get him a med he needs, but whatever--the important thing is that he has it now!

But why does he need it so much?

That's a whole other unanswered question.

We see his GI on Wednesday....please pray for our appointment, it's bound to be a big one because it includes the recent biopsy results of the cancer-like growth in his stomach.

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Gavin flip flops between feeling good and feeling bad all day and all night.

One minute he is happy and playful, the next he is rushing around the house in a panic looking for his trusty friend--his tupperware puke box.

It's been a hassle when it comes to going anywhere and it has been even more inconvenient while we try to homeschool!

So last week, I decided to make him a bed on the floor of our classroom so he could work on his May calendar while I taught Chelsea at the desk.

He was very happy there even though he didn't feel well one moment...

and felt fine the next.

I am so grateful that he doesn't feel crappy ALL the time--it's why we are home and not in the hospital.

And I LOVE being home and not at the hospital.

Really.

  But it's hard to live with so much flip-flopping around.

Plans get cancelled or they are ruined mid-stream or they are simply never made.

It's a rough patch that I know we will get through at some point...

I just hope it's sooner rather than later!

Thanks for your continued prayers....
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And finally...without further adieu....

The two contest winners are:

1.  Tee from Southern Sweet Tee (a private blog)

and

2.  Molly from the Fuglseth Family blog 

Contact me to get started on your free basic blog makeover! : )