October 14th, 2014 was our 14th wedding anniversary...too bad there isn't a 14th month! :) We went "away" for Saturday and Sunday on a date weekend and it was amazing to spend uninterrupted time with my love for that long. I love that we are still in love.
The rest of October wasn't so great. Gavin got admitted to the hospital again...here he is in admitting, since it was planned. He's happy because, well, he's Steve Rogers turned Captain America. Nothing can get him down!
We got settle in his room with our usual routine and he was still happy. Excited to get his own Wii right away. Excited to be in our favorite wing of the hospital. And yes, we have a favorite wing and we go often enough to have a routine. It's sad, but it's also life. It can be cool if you look at it through a different set of lenses every once in awhile.
Things took a turn for sour when Gavin realized he no longer has a PICC line and he needs an IV access. And they couldn't get an access without putting him through a lot of pain and tears first. We were sad and it triggered a masto reaction, but after they got the access, he got IV benadryl and...
things got better.
The next morning, we headed to Pre-Op because he was going into the OR for 4 procedures under general anesthesia. Again, happy before....
Miserable after--especially because he awoke with a tube down his nose that went into his stomach. :(
So miserable. Beyond it. I was going insane because I couldn't even sleep. I had to watch him to make sure he didn't yank it out in his sleep because he was c.r.a.z.y..
The next morning we got some preliminary results back--picture three results out of 50, but it was a start. The first two were huge. He is really anemic but most importantly, he now has a significant immune deficiency. So off to the PICU he went for IVIG (intravenous immunoglobulins). He was pre-medicated with Zofran, Benadryl and Tylenol for his mastocytosis, and he tolerated it well. As you can see, he even fell asleep. :)
And after it was done, they kept him under observation for a couple hours and determined he was fine to go home. We were beyond excited, and I promise that under all that sleepiness, he was too.
Our biggest prayer beyond the really medically important ones was a practical one that had to do more with our son's happiness than anything else. He was in the hospital from Thursday to late Saturday night. That following Wednesday was our church's Hero-ween. They got to come dressed up as their favorite Superhero and do all kinds of fun things. Heroes Inc. is a Bible program at our church, and while it started in September, generally, Gavin has been too sick to attend. He REALLY wanted to start on the night they were celebrating Hero-Ween. So we all prayed for that, and the Lord said yes. He got to go and he did awesome!!!!!!
We joked around that IVIG is superhero juice because it gave him the energy of a superhero. No one at church could believe how great he looked compared to how they saw him last and knowing everything he went through. It was a TOTAL God thing. I got to be there taking pictures for the church so I got to watch him enjoy himself from a distance with his friends and it was great.
The next fun thing is that he actually got to go trick-or-treating. He really hadn't done a whole lot of anything for several months without having gotten sick after, and then he just didn't have the energy or ability to do anything after that. The Lord used IVIG to change that. Not only did he get to go to Hero-Ween but he also got to go trick or treating with some of our friends and us.
He got really tired towards the end but he did it, and we are so proud of him. Unfortunately, both the morning after Heroes and the morning after trick-or-treating, he got sick, but it was a start in the right direction and he enjoyed every minute of it. He even decided it was worth it. And me? Sometimes, I agree it is!
Chelsea was Katniss Everdeen from The Hunger Games Trilogy.
I did her "Katniss" Braid. :)
November started in a beautiful way. We got to have a normal homeschool day--something we missed out on for most of October. It was bliss!
And that day ended like this.
We are still waiting on A LOT of medical results and Gavin still has ongoing issues. So please keep him in your prayers. But if I've learned anything over the past 9 and a half years of his challenging yet amazing life, it's this: "there's ALWAYS something to be thankful for."
For He is good, and His love endures forever.
Give Him Thanks, no matter what because all this? The hard, the yucky, the painful, the scary? He's got it ALL in His Hands and He WILL use it for good if you love Him and live for Him according to His purpose for your life.
We do, so we will continue to give thanks, even when we're crying. Even when we're scared. Even when we're mad. He can take it. We can tell Him. And then He will comfort us and guide us and re-assure us that there's more to this life than all this.
We were meant for something greater; in fact, we were made for another world. Someday, we'll be there and all will be made new, but until then, we press on with thanks.